Brain Injury / Brain Tumor / Coma
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American Brain Tumor Association
National. Founded 1973. Dedicated to supporting brain tumor patients and eliminating brain tumors by pen pal program, funding, encouraging research, providing free patient education materials, newsletter, publications and resource listings. Support group referrals and assistance in starting groups.
Write:
American Brain Tumor Assn.
2720 River Rd., Suite 146
Des Plaines, IL 60018
Voice: 1-800-886-2282
Fax: 847-827-9918
Website: http://www.abta.org
E-mail: info@abta.org
Verified: 10/14/2008
Brain Injury Association, Inc.
National. 42 state associations. 600 affiliated groups. Founded 1980. Advocacy organization providing services to persons with brain injuries, their families and professionals. Increases public awareness through state associations, support groups, information and resource network, seminars, conferences, literature and prevention programs. Guidelines for starting similar groups.
Write:
Brain Injury Association
1608 Spring Hill Rd., Suite 110
Vienna, VA 22182
Voice: 1-800-444-6443
Fax: 703-761-0755
Website: http://www.biausa.org
E-mail: braininjuryinfo@biausa.org
Verified: 10/14/2008
Coma/Traumatic Brain Injury Recovery Association
National network. Founded 1980. Support and advocacy for families of coma and traumatic brain injury survivors. Provides information, referrals and support group for family members and survivors. Quarterly newsletter and yearly conferences for families, brain injury professionals and survivors.
Write:
Coma/Traumatic Brain Injury Assoc.
8399 Republic Airport, Suite 106
Farmingdale, NY 11735
Voice: 631-756-1826
Fax: 631-756-1827
Website: http://www.comarecovery.org
E-mail: inquiry@comarecovery.org
Verified: 10/14/2008
Acoustic Neuroma Association
National. 53 affiliated groups. Founded 1981. Support and information for patients who have been diagnosed with acoustic neuroma, a benign tumor affecting the 8th cranial nerve. Quarterly newsletter ($40/yr), nationwide support group network, biennial national symposium and patient information booklets.
Write:
Acoustic Neuroma Association
600 Peachtree Parkway, Suite 108
Cumming, GA 30041-6899
Voice: 1-877-200-8211
Fax: 1-877-202-0239
Website: http://www.anausa.org
E-mail: info@anausa.org
Verified: 10/14/2008
Brain Tumor Society
National. Founded 1989. Committed to finding a cure for brain tumors. Improves the quality of life for brain tumor patients, survivors and caregivers through support programs, research, education and services. Maintains a database of brain tumor support groups, funds research, newsletter, e-newsletter, comprehensive resource guide and brain tumor fact sheets.
Write:
Brain Tumor Society
124 Watertown St., Suite 3-H
Watertown, MA 02472-2500
Voice: 1-800-770-8287
Fax: 617-924-9998
Website: http://www.tbts.org
E-mail: info@tbts.org
Verified: 10/14/2008
National Brain Tumor Foundation
National. Founded 1981. Support and information for persons with brain tumors and their loved ones. Provides funding for research as well as client services for brain tumor patients and family members. Offers support group listings, a quarterly newsletter, conferences, literature, support line, information and referrals. Assistance in starting and maintaining support groups.
Write:
National Brain Tumor Foundation
22 Battery St., Suite 612
San Francisco, CA 94111-5520
Voice: 1-800-934-2873
Fax: 415-834-9980
Website: http://www.braintumor.org
E-mail: nbtf@braintumor.org
Verified: 10/14/2008
Children's Brain Tumor Foundation, Inc.
(BILINGUAL) National network. Founded 1988. Provides a Parent-to-Parent Network to link parents of a child with a brain or spinal cord tumor with another parent with similar experiences for information and support. Offers free resource guide (English/Spanish), 'Parker's Brain Storm' (a book for children), Brain Tumor Week at Camp Sunshine, newsletter, annual teleconferences (available for replay on website) and funds research.
Write:
Children's Brain Tumor Foundation
274 Madison Ave., Suite 1004
New York, NY 10016
Voice: 1-866-228-4673
Fax: 212-448-1022
Website: http://www.cbtf.org
E-mail: info@cbtf.org
Verified: 10/14/2008
BRAIN TRUST, The Healing Exchange
Online. Founded 1993. Mission is to exchange support and information among people affected by brain tumors and related conditions including patient-survivors, families, caregivers and health professionals. Online support groups cover a large range of brain tumors, acquired injuries and other special interests.
Website: http://www.braintrust.org
E-mail: info@braintrust.org
Verified: 10/16/2008
Musella Foundation
National. Provides emotional support and exchange of information for patients with various brain tumors and their families. Information on research, medication and clinical trials. Chatrooms, support groups, video library and other resources.
Write:
Musella Foundation
1100 Peninsula Blvd.
Hewlett, NY 11557
Voice: 1-888-295-4740
Fax: 516-295-2870
Website: http://www.virtualtrials.com
E-mail: musella@virtualtrials.com
Verified: 10/14/2008
Brain Tumour Foundation of Canada
Online. Founded 1982. Virtual support group includes online chat room, message board and moderated chat events. Support groups meet monthly in many Canadian communities.
Website: http://www.braintumour.ca
E-mail: braintumour@braintumour.ca
Verified: 10/17/2008
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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| Last updated: | November 12, 2008 |
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Copyright © 2006 American Self-Help Group Clearinghouse. All rights reserved.
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