Hemochromatosis Genetic Screening: Other Places To Get Help
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Other Places To Get Help
Organizations
| American Hemochromatosis Society | |
| 4044 W. Lake Mary Blvd., Unit #104, PMB 416 | |
| Lake Mary, FL 32746-2012 | |
| Phone: | 1-888-655-IRON (1-888-655-4766) (407) 829-4488 |
| Fax: | (407) 333-1284 |
| E-mail: | mail@americanhs.org |
| Web Address: | www.americanhs.org |
The American Hemochromatosis Society is a nonprofit organization that provides general information about hemochromatosis and genetic testing for this condition. Educational brochures are available, as well as a newsletter, physician referrals, an online support group, and medical information. | |
| Iron Disorders Institute | |
| 2722 Wade Hampton Boulevard | |
| Suite A | |
| Greenville, SC 29615 | |
| Phone: | 1-888-565-IRON (1-888-565-4766) |
| Fax: | (864) 292-1878 |
| E-mail: | PatientServices@irondisorders.org |
| Web Address: | http://www.irondisorders.org |
The Iron Disorders Institute (IDI) is a nonprofit health agency founded in 1996. The IDI provides information about disorders of iron such as hemochromatosis, acquired iron overload , sickle cell anemia, juvenile hemochromatosis, African siderosis, thalassemia, porphyria cutanea tarda, sideroblastic anemia, iron deficiency anemia, and anemia of chronic disease. | |
| National Digestive Diseases Information Clearinghouse (NDDIC) | |
| 2 Information Way | |
| Bethesda, MD 20892-3570 | |
| Phone: | 1-800-891-5389 |
| Fax: | (703) 738-4929 |
| E-mail: | nddic@info.niddk.nih.gov |
| Web Address: | www.digestive.niddk.nih.gov |
This clearinghouse is a service of the U.S. National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the U.S. National Institutes of Health. The clearinghouse answers questions; develops, reviews, and sends out publications; and coordinates information resources about digestive diseases. Publications produced by the clearinghouse are reviewed carefully for scientific accuracy, content, and readability. | |
| Last updated: | April 30, 2007 |
|---|---|
| Author: | Jan Nissl, RN, BS |
| Reviewed By: | Anne C. Poinier, MD - Internal Medicine, Brian Leber, MDCM, FRCPC - Hematology |
| Editors: | Susan Van Houten, RN, BSN, MBA, Tracy Landauer |
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