Tay-Sachs Disease: Other Places To Get Help

This Web site has information about disabilities that affect children and their families. It also has links to many online resources. There is information about Tay-Sachs disease, Down syndrome, cystic fibrosis, group B strep, and many other conditions.

The Center for Jewish Genetic Diseases studies diseases that affect Ashkenazi Jews. The Center's mission is to improve the diagnosis, treatment, and counseling of patients and their families suffering from Jewish genetic diseases and to conduct research to combat these diseases.

This organization provides public and professional education about Jewish genetic disorders. It also promotes screening and prevention programs, information, and referrals.

The Genetic Alliance is an international organization made up of millions of people with genetic conditions and more than 600 advocacy, research, and health care organizations that represent their interests. The Alliance builds partnerships to promote healthy lives for all those living with genetic conditions.

The Genetic Alliance promotes healthy lives by working to speed the translation of genetic advances into quality and affordable health care, public awareness, and consumer-centered public policies.

The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents.

This Web site has consumer-friendly information about how human health is affected by genetics. There is information about genetic conditions, counseling, testing, and research as well as definitions of mutations, inheritance, and more.

NTSAD is a nonprofit, volunteer health agency devoted to the treatment and prevention of Tay-Sachs and other genetic conditions. Its Web site has information about genetic diseases, carrier testing, genetic counseling, and more. NTSAD has a support group for families and individuals affected by genetic diseases.