Romano Ward Syndrome
Important
It is possible that the main title of the report Romano Ward Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Synonyms
- Long QT Syndrome without Deafness
- Autosomal Dominant Long QT Syndrome
- Long QT Syndrome Type 1
- LQTS1
- RWS
- Romano-Ward Long QT Syndrome
- Ward-Romano Syndrome
Disorder Subdivisions
- None
General Discussion
Romano-Ward syndrome is an inherited heart (cardiac) disorder characterized by abnormalities affecting the electrical system of the heart. The severity of Romano-Ward syndrome varies greatly from case to case. Some individuals may have no apparent symptoms (asymptomatic); others may develop abnormally increased heartbeats (tachyarrhythmias) resulting in episodes of unconsciousness (syncope), cardiac arrest, and potentially sudden death. Romano-Ward syndrome is inherited as an autosomal dominant trait.
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Resources
International Long QT Syndrome Registry
P.O. Box 653
University of Rochester Medical Center
Rochester, NY 14642-8653
Tel: (585)276-0016
Fax: (585)273-5283
American Heart Association
National Center
7272 Greenville Avenue
Dallas, TX 75231-4596
Tel: (214)373-6300
Fax: (214)373-0268
Tel: (800)242-8721
Email: inquire@heart.org
Internet: http://www.americanheart.org
Sudden Arrhythmia Death Syndromes Foundation
508 E South Temple #20
Salt Lake City, UT 84102
USA
Tel: 8015310937
Fax: 8015310945
Tel: 8007867723
Email: sads@sads.org
Internet: http://www.sads.org
NIH/National Heart, Lung and Blood Institute Information Center
P.O. Box 30105
Bethesda, MD 20824-0105
Tel: (301)592-8573
Fax: (301)251-1223
Email: nhlbiinfo@rover.nhlbi.nih.gov
European Long QT Syndrome Information Center
Web Site on the Internet
Ronnerweg 2
Nidau, Intl 2560
Switzerland
Tel: 0041794741535
Email: info@qtsyndrome.ch
Internet: http://www.qtsyndrome.ch
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)519-3194
Fax: (240)632-9164
Tel: (888)205-2311
TDD: (888)205-3223
Email: gardinfo@nih.gov
Internet: http://www.genome.gov/10000409
HOPE (The Heart of Pediatric Electrophysiology)
PO Box 519
Park Ridge, NJ 07565
Tel: (201)505-9383
Fax: (201)505-0920
Tel: (877)394-4673
Email: info@heartbeatsofhope.org, info@timothysyndrome.org
Internet: http://www.heartbeatsofhope.org; http://www.timothysyndrome.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 5/18/2008
Copyright 1987, 1988, 1989, 1995, 1996, 2003 National Organization for Rare Disorders, Inc.
| Last updated: | May 18, 2008 |
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Copyright 1989, 1995, 1996, 1997, 2003 National Organization for Rare Disorders, Inc.
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