Interstitial Cystitis

Content provided by National Organization for Rare Disorders

Important

It is possible that the main title of the report Interstitial Cystitis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

• Hunner's Ulcer
• IC
• Hunner's Patch
• Pelvic Pain Syndrome
• Trigonitis
• Urethral Syndrome

Disorder Subdivisions

• None

General Discussion

Interstitial cystitis is a chronic, painful inflammatory condition of the bladder wall characterized by pressure and pain above the pubic area along with increased frequency and urgency of urination. This occurs because of chronic inflammation of the lining of the bladder and swelling of the interior walls of the bladder. Affected individuals urinate frequently with pain even though there is no diagnosed bladder infection. In a small percentage of cases, people with interstitial cystitis also have scarring and ulcerations on the membranes that line the bladder. Interstitial cystitis typically affects young and middle-aged women, although men can also have this disorder. The exact cause of interstitial cystitis is not known.

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Resources

Interstitial Cystitis Association

110 North Washington St

Suite 340

Rockville, MD 20850

USA

Tel: 3016105305

Fax: 3016105308

Tel: 8004357422

Email: ICAmail@ichelp.org

Internet: http://www.ichelp.org



American Autoimmune Related Diseases Association, Inc.

22100 Gratiot Avenue

Eastpointe, MI 48021-2227

Tel: (586)776-3900

Fax: (586)776-3903

Tel: (800)598-4668

Email: aarda@aarda.org

Internet: http://www.aarda.org/



American Urological Association Foundation

1000 Corporate Blvd.

Linthicum, MD 21090

USA

Tel: 4106893700

Fax: 4106893800

Tel: 8667464282

Email: auafoundation@auafoundation.org

Internet: http://www.auafoundation.org



NIH/National Kidney and Urologic Diseases Information Clearinghouse

3 Information Way

Bethesda, MD 20892-3580

Tel: (800)891-5390

Email: nkudic@info.niddk.nih.gov

Internet: http://kidney.niddk.nih.gov/



International Painful Bladder Foundation

Burgemeester Le Fèvre de Montignylaan 73

3055 NA

Rotterdam,

The Netherlands

Tel: +31-10 4613330

Fax: +31-10 4613330

Email: info@painful-bladder.org

Internet: http://www.painful-bladder.org



AutoImmunity Community



Tel: (919)-55-2-9057

Email: bandrews@autoimmunitycommunity.org

Internet: http://autoimmunitycommunity.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  1/3/2007

Copyright  1986, 1988, 1990, 1991, 1994, 1996, 1997, 1998, 1999, 2000, 2007 National Organization for Rare Disorders, Inc.

Last updated:	January 03, 2007