Hydranencephaly

Content provided by National Organization for Rare Disorders

Important

It is possible that the main title of the report Hydranencephaly is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

• Hydroanencephaly

Disorder Subdivisions

• None

General Discussion

Hydranencephaly is a central nervous system disorder characterized by an enlarged head and neurological deficits. The exact cause of Hydranencephaly is not known. This extremely rare form of Hydrocephalus involves the absence of portions of the brain. Results of neurologic examination in newborns may be normal or abnormal. The head usually appears enlarged at birth. Vision impairment, lack of growth and intellectual deficits are symptomatic of this disorder.

Resources

March of Dimes Birth Defects Foundation

1275 Mamaroneck Avenue

White Plains, NY 10605

Tel: (914)428-7100

Fax: (914)997-4763

Tel: (888)663-4637

Email: Askus@marchofdimes.com

Internet: http://www.marchofdimes.com



The Arc (a national organization on mental retardation)

1010 Wayne Ave

Suite 650

Silver Spring, MD 20910

Tel: (301)565-3842

Fax: (301)565-3843

Tel: (800)433-5255

TDD: (817)277-0553

Email: info@thearc.org

Internet: http://www.thearc.org/



National Hydrocephalus Foundation

12413 Centralia

Lakewood, CA 90715-1623

USA

Tel: 5629246666

Fax: 5629246666

Tel: 8888573434

Email: nhf@earthlink.net

Internet: http://www.nhfonline.org



Children's Brain Diseases Foundation

350 Parnassus Avenue

Suite 900

San Francisco, CA 94117

USA

Tel: 4156653003

Fax: 4158633452

Email: Jrider6022@aol.com



Guardians of Hydrocephalus Research Foundation

2618 Avenue Z

Brooklyn, NY 11235

Tel: (718)743-4473

Fax: (718)743-1171

Tel: (800)458-8655

Email: GHRF2618@aol.com



Hydrocephalus Association

870 Market Street

Suite 705

San Francisco, CA 94102

USA

Tel: 4157327040

Fax: 4157327044

Tel: 8885983789

Email: info@hydroassoc.org

Internet: http://www.hydroassoc.org



National Institute of Neurological Disorders and Stroke (NINDS)

31 Center Drive

8A07

Bethesda, MD 20892-2540

Tel: (301)496-5751

Fax: (301)402-2186

Tel: (800)352-9424

Email: braininfo@ninds.nih.gov

Internet: http://www.ninds.nih.gov/



MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network

150 Custer Court

Green Bay, WI 54301-1243

USA

Tel: 9203365333

Fax: 9203390995

Tel: 8773365333

Email: mums@netnet.net

Internet: http://www.netnet.net/mums/



International Hydranencephaly Support Group

11870 285th Street

Maple Ridge

British Columbia

V2W 1L9

Canada

Tel: 604-462-8691

Email: angelbearmom@shaw.ca

Internet: http://www.hydranencephaly.com

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  8/7/2007

Copyright  1987, 1989, 1999, 2007 National Organization for Rare Disorders, Inc.

Last updated:	August 07, 2007