Congenital Hydrocephalus: Other Places To Get Help

The Hydrocephalus Foundation, Inc., is a nonprofit organization that provides support, educational resources, and networking opportunities to people with hydrocephalus and their families. The foundation also promotes related research.

The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health, is the leading U.S. federal government agency supporting research on brain and nervous system disorders. It provides the public with educational materials and information about these disorders.

The goal of the Hydrocephalus Association is to ensure that families and individuals dealing with the complex issues of hydrocephalus receive personal support, comprehensive educational materials, and ongoing quality health care. This nonprofit group promotes the importance of medical research. And it has many services and resources for both members and nonmembers.

This is a nonprofit organization providing education and support to people with hydrocephalus and their families. HSG publishes a quarterly newsletter, provides parent referrals, sponsors meetings and conferences, and offers a library with more than 150 articles and tapes on hydrocephalus.

The National Hydrocephalus Foundation (NHF) is a not-for-profit public service organization that aims to increase public awareness and knowledge of hydrocephalus. The organization also promotes and supports research on the cause, treatment, and prevention of hydrocephalus. In addition to providing the public with informational pamphlets, the NHF maintains a reference library and videos on hydrocephalus, offers support groups, and publishes the quarterly newsletter LIFE LINE.