Behcet's Syndrome

Content provided by National Organization for Rare Disorders

Important

It is possible that the main title of the report Behcet's Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

• Adamantiades-Behcet's Syndrome
• BD
• Behcet's Disease
• Halushi-Behcet's Syndrome
• Oculo-Bucco-Genital Syndrome
• Touraine's Aphthosis
• Triple Symptom Complex of Behcet

Disorder Subdivisions

• None

General Discussion

Behcet's syndrome is a rare multisystem inflammatory disorder characterized by ulcers affecting the mouth and genitals, various skin lesions, and abnormalities affecting the eyes. Symptoms include areas of abnormal skin changes (lesions) of the mouth and genitals that tend to disappear and recur spontaneously. Inflammation of the outer fibrous layers of tissue (tunic) that surround the eyes (posterior uveitis) also affects individuals with Behcet’s syndrome. Additional systems of the body may also be affected including the joints, blood vessels, central nervous system, and/or digestive tract. The exact cause of Behcet’s syndrome is unknown.

Resources

American Behcet's Disease Association

PO Box 19952

Amarillo, TX 79114-9952

USA

Fax: 8066222257

Tel: 8007234238

Email: cfornabaio@behcets.com

Internet: http://www.behcets.com



Vasculitis Foundation

P.O. Box 28660

Kansas City, MO 64188

USA

Tel: 8164368211

Fax: 8164368211

Tel: 8002779474

Email: vf@vasculitisfoundation.org

Internet: http://www.vasculitisfoundation.org



National Association for Visually Handicapped

22 West 21st Street

New York, NY 10010

USA

Tel: 2128893141

Fax: 2127272931

Email: staff@navh.org

Internet: http://www.navh.org



American Autoimmune Related Diseases Association, Inc.

22100 Gratiot Avenue

Eastpointe, MI 48021-2227

Tel: (586)776-3900

Fax: (586)776-3903

Tel: (800)598-4668

Email: aarda@aarda.org

Internet: http://www.aarda.org/



Arthritis Foundation

1330 West Peachtree Street

Atlanta, GA 30309

USA

Tel: 4048727100

Fax: 4048720457

Tel: 8005684045

Email: help@arthritis.org

Internet: http://www.arthritis.org



O'Duffy, J. Desmond, M.D.

Mayo Clinic

Division of Rheumatology

200 First Street SW

Rochester, MN 55905



NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse

1 AMS Circle

Bethesda, MD 20892-3675

USA

Tel: 3014954484

Fax: 3017186366

Tel: 8772264267

TDD: 3015652966

Email: NIAMSinfo@mail.nih.gov

Internet: http://www.niams.nih.gov/Health_Info



NIH/National Eye Institute

Building 31 Rm 6A32

31 Center Dr MSC 2510

Bethesda, MD 20892-2510

United States

Tel: 3014965248

Fax: 3014021065

Email: 2020@nei.nih.gov

Internet: http://www.nei.nih.gov/



National Institute of Neurological Disorders and Stroke (NINDS)

31 Center Drive

8A07

Bethesda, MD 20892-2540

Tel: (301)496-5751

Fax: (301)402-2186

Tel: (800)352-9424

Email: braininfo@ninds.nih.gov

Internet: http://www.ninds.nih.gov/



Behcet's Organisation Worldwide

PO Box 27

Watchet

Somerset, Intl TA23 0YJ

United Kingdom

Tel: 07713 220303

Email: information@behcetsuk.org

Internet: http://www.behcets.org



MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network

150 Custer Court

Green Bay, WI 54301-1243

USA

Tel: 9203365333

Fax: 9203390995

Tel: 8773365333

Email: mums@netnet.net

Internet: http://www.netnet.net/mums/



Erythema Nodosum Yahoo Support Group



Internet: http://health.groups.yahoo.com/group/erythema_nodosum_Group/



CNS Vasculitis Foundation

9930 Morningfield

San Antonio, TX 78250-3743

USA

Tel: 2105238234

Email: pamela@cnsvf.org

Internet: http://www.cnsvf.org



Autoimmune Information Network, Inc

PO Box 4121

Brick, NJ 08723

Tel: (732)262-0450

Fax: (732)262-0450

Email: autoimmunehelp@aol.com

Internet: http://www.aininc.org



European Society for Immunodeficiencies (ESID)

c/o Dr. Esther de Vries

Jeroen Bosch Hospital

Dept. Paediatrics

P.O. Box 90153

Hertogenbosch, 5200 ME's

Netherlands

Tel: +31 73-6992965

Fax: +31 73-6992948

Email: info@esid.org

Internet: http://www.esid.org



AutoImmunity Community



Tel: (919)-55-2-9057

Email: bandrews@autoimmunitycommunity.org

Internet: http://autoimmunitycommunity.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  4/26/2008

Copyright  1986, 1987, 1988, 1989, 1990, 1992, 1994, 1995, 1997, 1998, 1999, 2000, 2002, 2004 National Organization for Rare Disorders, Inc.

Last updated:	April 26, 2008