Explaining The Condition - For The Caregiver: Alzheimers
Content provided by the Faculty of the Harvard Medical School
Explaining the condition
What should you tell someone who has Alzheimer's? Most experts say if the person asks what's wrong, you should be honest; knowing that the problem is a disease, not "insanity," is often a relief for the person affected. Telling someone who has not asked may be helpful, particularly if the person appears troubled about his or her condition. You may well be the person who knows the best way to handle the situation. Generally, though, it's best for the physician to explain the diagnosis to someone. New information doesn't always "stick," however, so don't be surprised if someone with Alzheimer's continues to ask what's wrong. In such cases, you can offer a reassuring but brief explanation.
You may also need to take some time to talk to family and friends. Individuals with Alzheimer's disease often look quite healthy in the early stages of disease, and people outside the household may be unaware that anything is wrong. But it's important to tell other family members and friends about the diagnosis as soon as possible, for two reasons. First, they need to know both that any unusual behavior is caused by disease, not by "craziness" or "meanness," and that they'll need new ways of responding as the person's cognitive abilities decline. Second, you and any other caregivers need emotional support and practical help from others (see "Tips for caregivers and friends").
Tips for caregivers and friendsGet organized. Call a family meeting to decide what kind of care is needed and who should give it or research it. Anyone who can't attend in person should try to do so by phone. Try to put aside differences so the focus stays on your loved one's needs. Make a list of what needs to be done and who can do it. While it's helpful to have one person take primary responsibility, everyone should offer to take on specific tasks. Ask for help. Try to find out whether your loved one already has an informal network of support. Do any friends and neighbors stop by to visit or lend a hand? If you ask them to do so, many people may be willing to help more formally or call you if anything seems amiss. Offer support. If you're not the main caregiver, ask that person how you can help. Offer specific suggestions. For example, could you take over for a weekend or vacation? Could you provide or coordinate certain services, such as housecleaning or transportation to doctor's appointments? If you're the main caregiver, spell out what needs to be done and what sort of help you require. Don't try to do everything yourself "because it's easier." Let other people step up to the plate. When someone offers help, accept it. If no one offers help, ask for it. Write out a list of smaller tasks that people could do, such as cooking an occasional dinner or running errands, and dole these out. Or simply ask others to check off what they can do. Collect medical information. Keep a health care file that includes information on the patient's current ailments, medications, allergies, medical history, specialists seen, and treatments. Obtain respite care. Regular respite care from professionals, family, and friends can give you much-needed breaks. Find out if there are any adult day care services available in your community. Join a support group. Support groups allow you to talk out frustrations with other people in your situation and get helpful ideas. Some of these groups are available online; others are run by the Alzheimer's Association, local hospitals, senior centers, or community groups. Take care of yourself. Eat well, get enough rest and exercise, and pursue activities that bring you pleasure. If it's too hard to find the time, consider getting extra help with some household chores. |
| Last updated: | January 23, 2007 |
|---|
Medical content reviewed by the Faculty of the Harvard Medical School. Harvard Health Publications, Copyright © 2007 by President and Fellows of Harvard College. All rights reserved. Used with permission of StayWell.
This information is not intended to replace the advice of a doctor. By using AOL Body, you indicate that you have read, understood, and agreed to our Terms of Service, Use of Content Agreement and AOL Body Advertising Policy. Read more about our content partners.
Search
Related Articles
Where Does it Hurt?
If you're experiencing aches and pains we can help you find answers. Find out what your symptoms mean for your health.
